Peer Support Volunteer
Disability: Becker Muscular Dystrophy
Age of onset: 7
Work experience (post injury): School and antiglobalization activism
Education: Some college; Southwestern College, California State University at Sacramento, San Diego State University, San Diego Mesa College
Primary language: English
Languages spoken: Spanish (recognize some Italian, studied Latin and Ancient Greek)
Life goals: To make small changes that accumulate to great changes. To make as much impact as possible by making as little negative impact as possible on the earth, and to show others how to do the same. To watch all borders — physical and psychological — be destroyed and tumble like the Berlin Wall.
Hobbies: Reading life-changing and conscience-raising works of nonfiction, Sharp Players performances
Interests: Food, physical and mental health, self-determination, liberation in action, revolutionary environmentalism, feminism, animal liberation, political music, veganism, zapatismo, disability theory, queer theory, autonomy, anarchy
Anything you would like to share about yourself that might be helpful to someone newly injured?
To be direct and to the point — I am not "injured." I have, however, experienced setbacks due to injuries related to my disability. Instead of having one quick injury, having Becker MD, though not entirely the same, is like a slow progression toward a similar situation as someone who is injured. I was diagnosed with MD at 7, but it wasn't until I was almost 15 that I began using a manual wheelchair. At 19, I lost the ability to walk or stand and began using a power chair. I am currently 27. I am using my second power chair. I use a water-powered bath lift and an electric bed with leg and torso lifting for comfort and circulation. I am very amicable, down-to-earth and not easily embarrassed by anything. I am very understanding, but pity no one. We are in the situation we're in, that's reality. Now that we're here, what can we learn from our experience and how is it tied to other people's struggles?
For More Information
To learn more about the Sharp Rehabilitation Peer Support Advisor Program, please call 858-939-6709 or send us an email. To contact Bob Alba, please be sure to include Bob's name in your message.
To learn more about Sharp's rehabilitation services or to find a Sharp-affiliated physician who can refer you to a physical therapist, call 1-800-82-SHARP (1-800-827-4277), Monday through Friday, 8 am to 6 pm. To find general information about rehabilitation, visit Rehabilitation in Adult Health or read the Rehabilitation News archive.